The Ainsley Paige Higgins’ Dare To Hope Foundation

Dedicated to improving the quality of life of children with rare disease and complex medical conditions.


Do you need help with getting the Deeming Waiver/Katie Beckett?  Have you been denied and need help re-applying or appealing the decision?  We can help!  Fill out our Paperwork Assistance Application if your child has a rare disease or a complex medical condition and we will pay an advocate to help you!

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Help us CELEBRATE the EIGHTY-ONE (81) children who are our 2014 STAR OF HOPE kids!  This is the largest number we have ever done and is over double what we have done in the past!  Read about each child, choose who you want to buy for, click and purchase from their Amazon link and the items are shipped DIRECTLY to them!  It couldn’t be easier to make the holiday for a child with a rare disease or a complex medical condition!

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Thank you to everyone who came out for our FIRST Toast to Hope!  Special Thanks to our sponsors, Visix, Hinton’s Wine Store/Bin 75, United Distributors and Choice One Dental Care!  Stay tuned for totals and to learn more about how this event will make an impact in the lives of so many children in 2015!

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Ainsley Paige Higgins

Ainsley Paige HigginsAinsley Paige Severtis Higgins, 6 years old, gained her angel wings on May 9, 2012 after a heroic fight with mitochondrial disease. She was the light of her parents’ eyes and was truly their princess. Her smile was infectious and although she never fully verbalized, her vocalizations, gestures and eyes were able to communicate everything to everyone.

Read Ainsley’s Story

Handy Cooler Fans

For the summer, we are proud to provide additional handy cooler fans free to families with children with rare diseases and complex medical conditions due to the generous donation of the Handy Cooler company!  If you are interested in obtaining one of these great fans, contact us at .  Don’t forget to LIKE our facebook page!